Published: American Academy of Pediatrics Section on Hospice and Palliative Medicine

Several months ago I was asked to write a short piece for the Parent column for the American Academy of Pediatrics Section on Hospice and Palliative Medicine.  I jumped at the opportunity but I hadn’t been writing much and was actually in a pretty bad place at the time and for weeks I struggled with what to say.

How can I tell the story of an entire lifetime in 1000 words or less?  How can I relay the true heartache that comes with knowing your child is going to die? How can I express my deep gratitude for palliative care and what it meant ot our family.

I struggled for weeks to figure out my angle. In the end, with the help of some friends with better editing skill than I, we realized the story was all right in front of me.

This journal is an amazing resource for palliative care and I am stunned at how much of this issue applies to Kai’s life and my life now.  I am honored to be a part of it.

aapSOHPM March 2014 Newsletter

 

This journal is an amazing resource for palliative care and I am stunned at how much of this issue applies to Kai’s life and my life now. I am honored to be a part of it.

11 thoughts on “Published: American Academy of Pediatrics Section on Hospice and Palliative Medicine

  1. A very beautiful article Kerri. Kai is so lucky to have you for his Mom. I know that he is proud of you and watching over you.
    MP

  2. Wow. So many other moms in similar situations, past or present, are going to be moved by your article. And know they are not alone.

  3. What a terrible road but it is all we can do…..love them and give them the best that we can while they are with us. You have a beautiful angel as we do also. It’s just not simple, it’s so much more complicated between the lines….. blessings as you continue to survive each day …..blessings & prayers, Terri (angel Gage’s mimi)
    http://www.caringbridge.org/visit/gageburi

  4. Again… I continue to be amazed at your strength and courage… I believe Kai was given to you so you could do all the things he needed during his beautiful life and I’m sure he is so proud of the mother you became because of him… What a wonderful tribute to Kai.

  5. So beautifully written… a reminder of how strong you both are/were and an incredible example of strength and courage when facing dying, in our world. Thank you for sharing!

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